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In this interview, we meet Pediatric Oncologist Riccardo Haupt from Istituto Giannina Gaslini. Why did you join PanCareSurPass? I have been involved with the Survivorship Passport (SurPass) since the development of its first prototype within the ENCCA and PanCareSurFup European projects. I have also coordinated all the subsequent releases until the last one under the PanCareFollowUp project in which we finalized the list of variables needed to generate the Treatment Summary of each survivor, as well the Care Plan for follow-up based on the IGHG and/or PanCare organ-specific screening recommendations. When, together with my colleague and friend Dr. Desiree Grabow from the University of Mainz, we spotted a new EU call about the transfer into the medical system of innovative solutions involving digital tools for people-centered care, we thought that the SurPass tool did perfectly fit to the call. The overall idea was indeed to integrate the SurPass platform into the electronic medical records in order to allow a semi-automatic data transfer and thus guarantee a more accurate and faster generation of the treatment summary, as well update of the information on follow-up ...

On 24 March 2022, Dr. Anne Uyttebroeck of KU Leuven presented the PanCareSurPass project to the General Assembly of the parents organisation for childhood cancer in Leuven - KiKOV. KiKOV- Leuven creates a warm network between and for families with a child who has, has had, or has died of cancer. Parents and young people can help and support each other, as 'experience experts'. Anne is the clinical leader of the implementation study of the PanCareSurPass project in Leuven.

In this interview, we meet Secretary General, HL7 Europe Foundation Catherine Chronaki. Why did you join PanCareSurPass? At HL7 Europe, we have been working with Patient Summaries, a snapshot of an individual‘s health, comprising of health problems, medications, allergies, and treatments, since 2010 with the epSOS large-scale cross-border pilot. Many years later, in Trillium aiming to scale up the use of patient summaries, we came across the Survivorship Passport website, and we said YES! The International Patient Summary (IPS) standards can help scale up deployment of the survivorship passport for all that need it! Preparing the PanCareSurPass project proposal was so exciting! You lead WP3 - tell us about it! WP3, 'SurPass v2.0 – Addressing technological challenges and solutions in six European countries', is where the insights gained from the pre-implementation study (WP1) meet the implementation strategy (WP2). Taking into account barriers and facilitators identified in each country, use cases and care workflows, and information that can semi-automatically transferred from the health information systems to SurPass we strive to streamline use of the Survivorship Passport in clinical practice.  The HL7 FHIR implementation guide ...

In this interview, we meet Professor of Paediatric Oncology Ruth Ladenstein from St. Anna Kinderkrebsforschung in Austria. Why did you join PanCareSurPass? The PanCareSurPass project pursues a goal whose idea already emerged about 10 years ago. It was an amazing journey and this project finally aims to realize and implement the Survivorship Passport in 6 different countries and I am proud to be at the forefront for Austria! Since I have supported the Survivorship Passport since the beginning, I was able to anchor the concept in the Cancer Mission Board on a European level as “Smart Card”. You lead WP2 - tell us about it! WP2 'Implementation Strategy development' is closely related to WP1 'Pre-implementation study' and WP3 'SurPass v2.0 – Addressing technological challenges & solutions in six European countries. In this WP, we work out the basis for implementation of the Survivorship Passport: Elaboration of barriers and facilitators Preparation of ELSE topics: Ethical, Legal, Social, Economic challenges on EU-level as well as individual country-specific situations Literature review and several hospital-specific interviews for exploring the country-specific conditions and individual use cases The goal ...