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Read all about the PanCareSurPass project.
Meet the WP1 Leaders from PMC!
In this interview, we meet PhD students Selina van den Oever and Ismay de Beijer from the research group of Prof. Leontien Kremer at the Prinses Máxima Centrum in the Netherlands. Selina van den Oever Ismay de Beijer Why did you join PanCareSurPass? Selina: I was very excited when my supervisors invited me to join the project. I believe digitalization of the survivorship care plan is the next step in improving Long-term Follow-Up (LTFU) care for all survivors, and I am very happy to be able to be part of that. Ismay: When I saw the vacancy for the PanCareSurPass project online, I immediately knew I wanted to apply (even though I still had to finish my Master‘s). The combination of science and improving care and quality of life of the survivors is what motivates me the most. You lead WP1 - tell us about it! WP1 is responsible for the pre-implementation study. With this study, we aim to identify barriers (bottlenecks) and facilitators (helping factors) to implementation of the digital SurPass. As a start, we sent a survey to healthcare professionals, ...
PanCareSurPass at 9th ERN PaedCan General Assembly
PanCareSurPass Coordinator Dr. Desire Grabow (UMC-Mainz) presented PanCareSurPass at the 9th ERN PaedCan General Assembly meeting on 09 Feb 2022. CCI Europe's Anita Kienesberger also joined the meeting to present her organisation's views on the outlook for survivors in Europe. ‘European Reference Networks’ (ERNs) are a European Union initiative to facilitate cooperation across national health systems for the benefit patients. The ERN PaedCan is tackling 'inequalities in childhood cancer survival by providing high-quality, accessible and cost-effective cross-border healthcare to children and adolescents with cancer, regardless of where they live.' European wide implementation of the SurPass, driven by projects like PanCareSurPass, supports this mission by providing a digital tool to support high-quality person-centred care for survivors of childhood and adolescent cancer in the long-term. Many PanCareSurPass partners are also involved in the ERN PaedCan, which is coordinated by CCRI. Stakeholder representatives from SIOP Europe and CCI Europe play key roles and many of our clinics are network members (KU Leuven/UZ Leuven, IGG, VULSK, HULAFE).
Late Effects in Childhood and Adolescent Cancer Survivors Course
PanCare and SIOP Europe joined forces to deliver a virtual course on Late Effects in Childhood and Adolescent Cancer Survivors on 13 - 14 Jan 2022. Aimed at healthcare professionals, different perspectives from inter- and multidisciplinary late effects specialists from across Europe were shared alongside the perspective of survivors. Interactive case discussions and tools for daily practice were part of the course as well. PanCare's EU-funded research projects were also presented (PanCareSurFup, PanCareLIFE, PanCareFollowUp, PanCareSurPass).
Radio Interview in Spain by HULAFE
Julia Balaguer of HULAFE gave a radio interview about the PanCareSurPass project on 06 Nov 2021. She spoke about the role of HULAFE in the project and the importance of thee SurPass for survivors of childhood cancer.
PanCareSurPass at 8th ERN PaedCan General Assembly
PanCareSurPass Research Manager Dr. Riccardo Haupt (IGG) presented PanCareSurPass at the 8th ERN PaedCan General Assembly meeting (30 November - 01 December 2021). SIOP Europe and CCI Europe also joined the meeting, along with representatives from our clinical partners. These societies are key amplifiers of the PanCareFollowUp project results, and the project was included in SIOP Europe’s list of projects to check out. ‘European Reference Networks’ (ERNs) are a European Union initiative to facilitate cooperation across national health systems for the benefit patients. The ERN PaedCan is tackling 'inequalities in childhood cancer survival by providing high-quality, accessible and cost-effective cross-border healthcare to children and adolescents with cancer, regardless of where they live.' European wide implementation of the SurPass, driven by projects like PanCareSurPass, supports this mission by providing a digital tool to support high-quality person-centred care for survivors of childhood and adolescent cancer in the long-term. Many PanCareSurPass partners are also involved in the ERN PaedCan, which is coordinated by CCRI. Stakeholder representatives from SIOP Europe and CCI Europe play key roles and many of our clinics are network members (KU Leuven/UZ Leuven, IGG, VULSK, HULAFE). ...
Working Group on Long-Term Monitoring, 2021 Meeting
Coordinator Dr. Desiree Grabow (UMC-Mainz) was at 30 November 2021 meeting of the German Working Group on Long-Term Monitoring (Arbeitsgemeinschaft Langzeitbeobachtung der GPOH). Dr. Grabow’s presentation ‘Das PanCareSurPass Projekt und die nationale Implementierung des Survivorship Passport (SurPass)’ presented PanCareSurPass and how the SurPass can be used in clinical practice.
This project has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 899999. The material presented and views expressed here are the responsibilities of the author(s) only. The EU Commission takes no responsibility for any use made of the information set out.