News
Read all about the PanCareSurPass project.
Survivor’s Week June 2021
From 21 - 27 June 2021, Childhood Cancer International Europe shared the perspectives of survivors across Europe as part of Survivor's Week. It was great to hear the voice of survivors!
Feature in the PanCare June 2021 Newsletter
PanCareSurPass has been featured in the latest PanCare newsletter! Subscribe to keep up to date with all the latest PanCare news...
PanCareSurPass at 7th ERN PaedCan General Assembly
PanCareSurPass Research Manager Dr. Riccardo Haupt (IGG) presented PanCareSurPass at the 7th ERN PaedCan General Assembly meeting on 20 May 2021. ‘European Reference Networks’ (ERNs) are a European Union initiative to facilitate cooperation across national health systems for the benefit patients. The ERN PaedCan is tackling 'inequalities in childhood cancer survival by providing high-quality, accessible and cost-effective cross-border healthcare to children and adolescents with cancer, regardless of where they live.' European wide implementation of the SurPass, driven by projects like PanCareSurPass, supports this mission by providing a digital tool to support high-quality person-centred care for survivors of childhood and adolescent cancer in the long-term. Many PanCareSurPass partners are also involved in the ERN PaedCan, which is coordinated by CCRI. Stakeholder representatives from SIOP Europe and CCI Europe play key roles and many of our clinics are network members (KU Leuven/UZ Leuven, IGG, VULSK, HULAFE).
PanCareSurPass at 25th PanCare Meeting
Coordinator Dr. Desiree Grabow (UMC-Mainz) presented an 'Introduction to PanCareSurPass ' at the 25th PanCare Meeting on 19 May 2021. Held virtually, the meeting offered an interactive programme with interesting presentations, scientific updates on PanCare European research grants, a survivor session and room for social interaction to connect network members. Meeting attendees represented a broad range of participants, including Survivors, Parents, Researchers and Healthcare professionals.
PanCareSurPass at 2021 SIOP Europe/CCI Europe Joint Meeting
SIOP Europe's 2nd Annual Meeting brought together the diverse stakeholders who are invested in tackling key issues for children and adolescents with cancer, with the aim of increasing the cure rates and improving the quality of life for survivors. The Annual Meeting was held in partnership with survivor organisation CCI Europe's 11th CCI Europe Conference. Coordinator Dr. Desiree Grabow of UMC-Mainz presented 'Implementation of the Survivorship Passport into Electronic Health Information Systems'. Research Manager Dr. Riccardo Haupt of IGG presented PanCareSurPass at the 'PanCare and ELTEC - Late effects' session on 28th April 2021. Dr. Haupt's full presentation is available here. The project was also featured in the session 'CCI Europe - Together we are stronger - current projects' on 29th April 2021, presented by Hannah Gsell of CCI Europe. Hannah's full presentation is available here.
PanCareSurPass Kicks Off!
We're delighted to have started the project! Project partners met virtually from 04 - 05 March 2021 to make plans for the first six months of work. We'll be starting with a pre-implementation study in Austria, Belgium, Germany, Italy, Lithuania and Spain to look at different factors that will impact on the implementation of the Survivorship Passport. The results of this work will feed into the development of an Implementation Strategy, as well as inform the development of SurPass v2.0. Be sure to follow us on social media for all our latest news! Facebook: @pancaresurpass Twitter: @pancaresurpass
This project has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 899999. The material presented and views expressed here are the responsibilities of the author(s) only. The EU Commission takes no responsibility for any use made of the information set out.