News

PLAIN summaries are now available on the PanCare website! The PanCare PLAIN language summaries have information about late effects and recommendations for long-term follow-up care for survivors of childhood, adolescent, and young adult cancer (called survivors). These summaries contain information about health problems for survivors, as well as their non-specialist healthcare providers, relatives and friends. The summaries are useful supports for Survivorship Care and will be integrated into the SurPass in the future. There is a handy search function where survivors and caregivers can find summaries most relevant to them. Check it out!

Research Manager Dr. Riccardo Haupt (IGG) attended the Young Cancer Survivor Workshop organised by the European Commission’s Directorate General for Research and Innovation (DG-RTD) on 15 December 2023 in Brussels. Dr. Haupt presented PanCareSurPass and smartCARE project activities. Representatives of pan-European organisations involved in PanCareFollowUp (CCI Europe, SIOP Europe and PanCare) met with EU policy officers from DG SANTÉ, DG RTD and HADEA as part of a larger discussion about how to maximise synergies between EU institutions and European advocacy organisations and professional societies. Discussions included how to better reach and include  young cancer survivors in setting the priorities for EU-level actions on survivorship, many of which are outputs of Europe’s Beating Cancer Plan.

The 29th PanCare meeting (20 - 22 September 2023) was hosted in Ghent by Els Vandecruys (Pediatric Hemato-Oncologist) and Lieselotte Wauters (Nurse Consultant) of the Department of Pediatric Hemato-Oncology of the Ghent University Hospital with the support of the vzw Kinderkankerfonds. The meeting featured an interactive program with presentations on various aspects of long term follow-up and survivorship care, scientific updates on the European research grants and collaboration. Desiree Grabow (UMC-Mainz) and Riccardo Haupt (IGG) gave an update on PanCareSurPass during the session on on-going PanCare projects. Ismay de Beijer (PMC) shared some results from the pre-implementation study of IT-related barriers and facilitators to implementation of the digital SurPass in Austria, Belgium, Germany, Italy, Lithuania, Spain. Attendees of the 29th PanCare Meeting, September 2023

Dr. Riccardo Haupt  (IGG) presented 'Pediatric Cancer Survivorship: PanCareSurPass' at the Italian national meeting of the Alliance Against Cancer (ACC) on 29 September 2023. ACC is the National Oncology Network in Italy founded in 2002 by the Ministry of Health,j oined by 28 Institutes for comprehensive cancer patient care and research (IRCCS), AIMaC, Italian Sarcoma Group, CNAO Foundation, INFN, INFN, Politecnico di Milano Foundation and Italian National Institute of Health. ACC has the mission to bring technological and organisational innovation from basic research to clinical practice, raising and unifying the level of care, treatment, and rehabilitation of cancer patients throughout the country.

PanCareSurPass Coordinator Dr. Desiree Grabow (UMC-Mainz) presented Der SurvivorshipPassport (SurPass) als Werkzeug der Versorgung und Forschung at a Survivor Day in Germany on 23 Sep 2023.

Sharing project results with healthcare professionals is an important part of PanCareSurPass. PMC's Ismay de Beijer and Selina van den Oever presented European guidelines and the SurPass at a Master's course in Pediatric Oncology at the Princess Máxima Center held from 20 - 21 April 2023.