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In this interview, we meet project manager Kylie O'Brien from Pintail. Why did you join PanCareSurPass? I‘ve worked on two previous PanCare projects (PanCareLIFE, PanCareFollowUp) so I was invited by the team to join for a third! Explain your organization and your role in PanCareSurPass. I work for Pintail Ltd, an Irish company specialising in EU proposal support and project management. My job is to help the Management Team oversee the project to make sure things run smoothly. Why do you think PanCareSurPass is an important project? PanCareSurPass is an important project to help the digital transformation of healthcare benefit childhood cancer survivorship. It’s also an important project for improving equity of survivorship care across Europe. What makes this project unique for you? The team! It‘s a unique mix of clinicians, IT professionals and survivors. What do you hope this project will achieve? I hope this project will see the SurPass established in the health systems of the six study countries after the project ends, and the first collaborations to see it more widely implemented in more countries in the future. ...

In this interview, we meet Psychologist, project manager and patient expert Hannah Gsell from Childhood Cancer International - Europe. Why did you join PanCareSurPass? I am already working for CCI Europe in the PanCareFollowUp project as a project manager. There it is about the creation of a good and person-centered long-term follow-up (LTFU) care for survivors. Part of this is also the integration of the SurPass into this type of LTFU. Many survivors throughout Europe still lack good and reliable long-term aftercare, but above all the necessary knowledge about possible late effects and the need for lifelong follow-up care. That is the reason why I am in this project. I want to help survivors all over Europe to get the follow-up care and education about what they need for it, so that they can take care of their health in a self-determined way. Explain your organization and your role in PanCareSurPass. CCI Europe is the European branch of Childhood Cancer International (CCI). The Board of CCI is interlinked with the CCI Europe Regional Committee fostering a strong partnership and exchange of knowledge across ...

Dr. Desiree Grabow (UMC-Mainz) gave an update to the GPOH Conference (26 November 2022) on PanCareSurPass. The audience of 200 included oncology experts, psychologists and researchers.

Dr Monica Muraca (IGG) presented PanCareSurPass at the European Cancer Summit 2022 in Brussels on 17 Nov 2022. Her poster entitled 'The Survivorship Passport a digital tool for better health and homogeneous long-term care for childhood cancer survivors' was presented during a session  attended by researchers, doctors, survivors, patient advocates and parents societies. Videos of presentations from the event are available to the public here.  

In this interview, we meet Prof. Leontien Kremer from PMC. Why did you join PanCareSurPass? My main focus is on childhood cancer survivorship research and evidence-based pediatric oncology care. PanCareSurPass is an interesting project as it explores how to use the digital SurPass tool to improve care. Explain your organization and your role in PanCareSurPass. I am a Research Leader at the Prinses Maxima Centre (PMC) for pediatric oncology. PMC is a unique center that brings together all the highly complex care and research for children with cancer in the Netherlands. My group focuses on survivorship research and quality of care improvement. In PanCareSurPass, I lead the pre-implementation study in WP1. The study includes an online survey and Open Space workshops to learn more about the barriers and facilitators for implementing the SurPass, from the perspective of survivors, healthcare providers, hospital managers and IT teams. WP1 also includes the development of care recommendtions for survivors who are less than 5 years from the end of treatment, for whom no guideline currently exists. This work was in collaboration with the International Late Effects of Childhood ...

In this interview, we meet Alexander Degelsegger-Márquez, Gerald Gredinger, Kathrin Trunner, Florian Trauner from the Austrian National Public Health Institute. The team are experts in Digital Health, Health and project management. Why did you join PanCareSurPass? Alexander: I am passionate about the challenge of finding suitable digital tools to support care processes and incorporate them into healthcare infrastructures. Gerald: I perceive it as a great opportunity to accompany the whole implementation process of the PanCareSurPass from the idea to the actual operationalization. Kathrin: I find it exciting to support digital health solutions being implemented into national health systems. Florian: Being able to offer equitable and evidence-based medicine and care to people irrespective of their country of origin is one of my ultimate goals. Explain your organization and your role in PanCareSurPass. GÖG is the Austrian National Public Health Institute serving as a think-tank for health care topics. Among its core assets for this project are its methodological expertise in health economics and its strong network with both academic research institutions and public bodies. GÖG possesses broad expertise in the collection and processing of statistical ...