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After a couple of years of virtual only meetings, the PanCare Spring Meeting returned in person from 4th - 6th May 2022 in Torino! PanCareSurPass was on the agenda with a number of presentations. On Day 1, IGG's Monica Muraca presented 'Survivorship passport: real practice experience in Italy', while Desiree Grabow (UMC-Mainz) and Riccardo Haupt (IGG) gave an overview of the project as a whole. On Day 2, the first results of the project were presented by PMC's Selina van den Oever presenting 'Barriers and facilitators of implementation of the digital survivorship passport in 6 European countries: a PanCareSurPass online survey study' and Ismay de Beijer presenting 'Barriers and facilitators to the implementation of the PanCare Survivorship Passport v2.0 in six European countries using Open Space Methodology'. On Day 3, Riccardo Haupt led a session for the PanCare Survivorship Passport Group. It was a packed programme but lovely to be back to seeing each other in person!

In April 2022, Ismay de Beijer and Emma Hardijzer from the PMC in Utrecht held two physical meetings with colleagues in La Fe in Valencia. Together, they organised the Open Space meeting for Spain that is part of the WP1 pre-implementation study, which is looking at barriers and facilitators to the implementation of the Survivorship Passport V2.0. The Open Space meeting was a success! Multiple stakeholders (e.g. survivors, pediatric oncologists, IT-specialists) were present and a wide variety of topics were brought up by the participants for the discussions. Ultimately, three 20-minute discussion rounds took place to talk about all 11 topics. Each discussion group wrote down their main conclusions during or immediately after their discussion. Similar Open Space meetings are being held in Austria, Belgium, Germany, Italy and Lithuania. The results will be analysed and used to inform the development of our Implementation Strategy for Survivorship Passport V2.0 during the next stages of the project.

In this interview, we meet Anna-Liesa Filbert (Project Manager), Doro Niehoff (Data manager), Diana Walz (IT specialist) & Desiree Grabow (Coordinator) from UMC-Mainz in Germany. Desiree Grabow Anna-Liesa Filbert Doro Niehoff Why did you join PanCareSurPass? Anna-Liesa: It is my ambition to conduct research in the field of late effects after cancer in childhood and adolescence. Doro: As a data manager, I prefer to work in projects whose goal I strongly support. That's why I'm happy to be involved in the implementation of SurPass in Germany and Europe. Diana: I want to use my IT experience for meaningful and community-relevant work. Desiree: Riccardo and I initiated PanCareSurPass as there is a lack of supportive long-term follow-up care in most of the European countries. There is a need of a spread and translation of scientific information. The SurPass, ie a treatment summary and a care plan, is one of the tools needed for appropriate long-term care and we do think that every survivor in Europe should have the right to get one if he/she would like to get one. ...

In this interview, we meet Pediatric Oncologist Helena van der Pal from PanCare. Please introduce yourself and tell us why you joined PanCareSurPass? My name is Helena van der Pal. I am the past Chair of the Board of the PanCare network. I am one of the founding members of the PanCare Society and a Board Member since 2011. I am a medical oncologist and have led the Outpatient Clinic for adult survivors of childhood cancer in the Emma Children’s Hospital/Academic Medical Centre in Amsterdam, the Netherlands, since 1997, including delivering care for 2,400 childhood cancer survivors. Since 2016, I am a senior staff member of the LATER Expertise Center for adult survivors of childhood cancer in the Princess Maxima Center for paediatric oncology in Utrecht, the Netherlands. I have a PhD in late effects after treatment for childhood cancer and have participated in the Dutch Childhood Oncology Group Late Effects Taskforce from its inception. I am also WP leader for PanCare for our sister project: PanCareFollowUp. For me, PanCareSurPass represents another step towards PanCare’s ultimate goal: to achieve excellent survivorship care in ...

In this interview, we meet Alexander Degelsegger-Márquez, digital health expert, and Gerald Gredinger, health expert, from Gesundheit Österreich GmbH in Austria. Alexander Degelsegger-Márquez Gerald Gredinger Why did you join PanCareSurPass? Alexander: I am passionate about the challenge of finding suitable digital tools to support care processes and incorporate them into healthcare infrastructures. Gerald:I perceive it as a great opportunity to accompany the whole implementation process of the PanCareSurPass from the idea to the actual operationalization. You lead WP5 - tell us about it! Our work package looks at the PanCareSurPass from a health economic perspective. We try to gather evidence on the costs and benefits of introducing the SurPass 2.0 into different environments. Ultimately, this should help health policy-makers and managers in deciding whether and how to embark on the SurPass 2.0 journey. Why do you think PanCareSurPass is an important project? PanCareSurPass helps in ensuring that childhood cancer survivors can get the best possible follow-up care, regardless of where in Europe they are. This is also an important blueprint for advancing the digitally supported and guidelines-based care for patients with ...