Dr. Desiree Grabow is Deputy Head of the German Childhood Cancer Registry (GCCR). With more than 66,000 registered patients the GCCR is the most comprehensive childhood cancer registry worldwide. At the GCCR, Desiree is responsible for Long-term Surveillance.
Desiree is the Coordinator of PanCareSurPass, with overall responsibility for running the project. She will also lead the data centre for the multi-country implementation study, overseeing data collection, quality assurance and analysis of the study data.
Anna-Liesa Filbert is an epidemiologist who works as a junior researcher at the Division of Childhood Cancer Epidemiology, German Childhood Cancer Registry at the Institute of Medical Biostatistics, Epidemiology and Informatics (IMBEI) situated at University Medical Center of the Johannes Gutenberg University Mainz in Germany.
In addition to her involvement in a national SurPass multi-center implementation study in Germany, Anna-Liesa assists the coordinator in project management, setting up structures to meet the ethical requirements, as well as in conducting and analysing the multi-country implementation study in PanCareSurPass.
Dorothea Niehoff is trained in Medical Documentation. She is a Senior Data manager at the Institute of Medical Biostatistics, Epidemiology and Informatics (IMBEI) situated at University Medical Centre of the Johannes Gutenberg University Mainz in Germany. In a national SurPass multi-center implementation study in Germany, Dorothea is responsible for constructing the database and merging the data from the different sources.
In PanCareSurPass, she will be responsible for the data collection activities in the implementation study.
Diana is a computer scientist at the Institute of Medical Biostatistics, Epidemiology and Informatics (IMBEI) situated at University Medical Centre of the Johannes Gutenberg University Mainz in Germany.
Diana sets up the local infrastructure and is working on the local installation of the PanCareSurPass application in Germany. Also, she programs a database application to the needs of the national SurPass implementation and a binding to the FHIR interface for the PanCareSurPass multi-country implementation study.
This project has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 899999. The material presented and views expressed here are the responsibilities of the author(s) only. The EU Commission takes no responsibility for any use made of the information set out.